Advanced Planning with Mom

By Lisa Vigil Schattinger, MSN, RN
December 14, 2016

The day before Thanksgiving, my mother and I were in the small room that serves as her office. Vibrant reminders of friends and family who’ve died surrounded us. There were also mementos from her trips afar, as well as things that she loves for her own special reasons. It’s a distilled sample of all that makes my mother who she is.

In my mind, we were there for a couple of reasons. One was because, since starting Ohio End of Life Options, a 501(c)3 non-profit organization, we have been talking to a lot of people about filling out their advance directives and appointing a healthcare power of attorney. We had realized that we needed to make sure we were walking the talk and have all of our own paperwork in order.

The other reason was to honor my mother, Janet Rowe. Continue reading

Ohio Senator Seitz wants to make assisting suicide a felony

HB 470 sponsored by Senator Seitz of Cincinnati passed in the Ohio Senate on 12/8. (see cleveland.com article below)

However, Death with Dignity laws that legalize medical aid in dying are not considered suicide. Under these laws, a mentally competent, terminally ill adult requests and then ingests a lethal dose of medication made available through a doctor’s prescription. Their terminal illness must be confirmed by another doctor and any concern about mental illness must be evaluated by a mental health specialist. A person does not qualify solely because of age or disability. They may change their mind at any time. Please take the time to research death with dignity laws to understand this option: Death with Dignity National Center.

  • In Oregon, less than 1,000 people have chosen this option since it went into effect in 1997. Of the people who’ve received the prescription, 1/3 never used it. It seems to provide comfort in having a sense of control.
  • The greatest number of people who have used it had a terminal form of cancer. The second biggest user group had ALS.
  • 90% of the people were enrolled in hospice care (compared to 46% of medicare users nation wide) and 94% died at home.

Take a moment to learn the facts about the laws in Oregon, Washington, Vermont, California and soon in Colorado.

Ohio lawmakers consider making assisted suicide a felony
by Jeremy Pelzer, Cleveland.com, December 9, 2016

COLUMBUS, Ohio — Ohio lawmakers are considering legislation that would for the first time impose criminal penalties for assisted suicide in the state.

House Bill 470, which may face a final Senate vote on Thursday, would make knowingly assisting in a suicide a third-degree felony in Ohio, punishable by up to five years in prison.

Currently, Ohio law only permits a court to issue an injunction against anyone helping other people to kill themselves.

If the Senate passes the bill on Thursday – expected to be the last day of the  legislative session – it would head to Gov. John Kasich for his signature. The measure passed the Ohio House 92-5 last May.

State Sen. Bill Seitz, the Cincinnati Republican who authored HB 470, said the legislation mirrors Michigan’s 1998 ban on assisted suicide, which was passed in response to Dr. Jack Kevorkian’s well-publicized campaign to help more than 130 terminally ill patients end their own lives.

Seitz said he wasn’t aware of anyone in Ohio who has or intends to assist in suicides. But he said HB 470 was introduced partially in response to concerns over a different bill on end-of-life care that some abortion opponents worried would be the first step toward legalizing assisted suicide in Ohio.

“We do believe in the MOLST bill,” Seitz said, referring to the other bill, which seeks to create the Medical Order for Life-Sustaining Treatment. “But we also are firmly against assisted suicide. And how can we prove it to you? We’re going to make it a felony of the third degree if you do it.”

News Report helps explain Death with Dignity law: featuring the Rowe family and founder of Ohio End of Life Options

Nov. 7, 2016: Reporter Megan Allison of CBS affiliate station, KTVL News 10, in Medford, Oregon interviewed Ohio End of Life Options’ founder, Lisa Vigil Schattinger, and her family about their experience with Oregon’s Death with Dignity Act. The video is in 2 parts. Vigil Schattinger appears briefly in part 2.
Death with Dignity: The Rowe Family (4.5 min.)
Death with Dignity, part 2: the roots of physician-assisted dying in Oregon (3 min)

New Memoir: Wild and Precious Life by Deborah Ziegler

“In WILD AND PRECIOUS LIFE, a poignant memoir, Brittany Maynard’s mother, Deborah Ziegler, carries forward her daughter’s legacy by sharing their story. In alternating chapters, beginning with the initial diagnosis, Ziegler interweaves the mostly untold tale of her daughter’s final year, with the story of Brittany’s life from infancy to young adulthood. The message that emerges is that while we can’t control the hand fate delivers, we can decide how we play it.”
Simon & Schuster’s website for Wild and Precious Life

Archbishop Desmond Tutu clarifies his own wishes

Archbishop Desmond Tutu: When my time comes, I want the option of an assisted death, Opinion, by Desmond Tutu, The Washington Post, October 6, 2016

Desmond Tutu is archbishop emeritus of Cape Town and a Nobel Peace laureate.

Throughout my life, I have been fortunate to have spent my time working for dignity for the living. I have campaigned passionately for people in my country and the world over to have their God-given rights.

‘Our right to an assisted death’
(To play the video – click on the link posted above)
I have been fortunate to have long spent my time working for dignity for the living. Now, with my life closer to its end than its beginning, I wish to help give people dignity in dying. (Dignity in Dying and Compassion & Choices)

Now, as I turn 85 Friday, with my life closer to its end than its beginning, I wish to help give people dignity in dying. Just as I have argued firmly for compassion and fairness in life, I believe that terminally ill people should be treated with the same compassion and fairness when it comes to their deaths. Dying people should have the right to choose how and when they leave Mother Earth. I believe that, alongside the wonderful palliative care that exists, their choices should include a dignified assisted death.

There have been promising developments as of late in California and Canada , where the law now allows assisted dying for terminally ill people, but there are still many thousands of dying people across the world who are denied their right to die with dignity. Two years ago, I announced the reversal of my lifelong opposition to assisted dying in an op-ed in the Guardian. But I was more ambiguous about whether I personally wanted the option, writing: “I would say I wouldn’t mind.” Today, I myself am even closer to the departures hall than arrivals, so to speak, and my thoughts turn to how I would like to be treated when the time comes. Now more than ever, I feel compelled to lend my voice to this cause.

I believe in the sanctity of life. I know that we will all die and that death is a part of life. Terminally ill people have control over their lives, so why should they be refused control over their deaths? Why are so many instead forced to endure terrible pain and suffering against their wishes?

I have prepared for my death and have made it clear that I do not wish to be kept alive at all costs. I hope I am treated with compassion and allowed to pass on to the next phase of life’s journey in the manner of my choice.

Regardless of what you might choose for yourself, why should you deny others the right to make this choice? For those suffering unbearably and coming to the end of their lives, merely knowing that an assisted death is open to them can provide immeasurable comfort.

I welcome anyone who has the courage to say, as a Christian, that we should give dying people the right to leave this world with dignity. My friend Lord Carey, the former archbishop of Canterbury, has passionately argued for an assisted-dying law in Britain. His initiative has my blessing and support — as do similar initiatives in my home country, South Africa, throughout the United States and across the globe.

In refusing dying people the right to die with dignity, we fail to demonstrate the compassion that lies at the heart of Christian values. I pray that politicians, lawmakers and religious leaders have the courage to support the choices terminally ill citizens make in departing Mother Earth. The time to act is now.

Support in Ohio Grows!

This was the last email update from Ohio End of Life Options on 9/16/16.

In less than one month the outlook for Ohio is looking up.  

Supporters have been galvanized by the news that Ohio Senator Charleta Tavares (D – Columbus) is planning to introduce death with dignity style legislation in 2017. I took a road trip to meet advocates in the Columbus, Cincinnati and Dayton areas and spoke at the invitation of the Tri-State Freethinkers in Newport, KY on September 7. They are a wonderfully informed and action-oriented group of supporters. That trip was topped off by my first phone call with Senator Tavares. It was a short call but I was able to share with her how grateful I and many Ohioans are to her.

One of those supporters is Doris Yamarick of Circleville. She is passionate about medical aid-in-dying since her husband, Wally, died with ALS in 1999. She understands the importance of strong, moderate bi-partisan support for the legislation so she contacted her Representative, Gary Scherer (R – District 92), who plans to look further into this issue.

On Monday, September 12, I was honored to address the Cleveland Clinic Bioethics community as a part of their Grand Rounds lecture series (which earn continuing medical education units for those attending). In addition to the group attending, my lecture was broadcast live to their subsidiary hospitals.  It was attended by Ethics Fellows and faculty, as well as representatives from Palliative Medicine, Hospice, End-of-Life Specialists and philosophers from throughout Northeast Ohio. Clearly there has been a lot of thought put into this important and sensitive issue. Thank you to Dr. Paul Ford for including this topic.

Stay involved!
* We are planning more educational events, so bring friends.
* Ask for a meeting with your legislator and invite a member of Ohio End of Life Options to speak. This was very effective when Judith Allen organized a meeting with her Representative Nickie Antonio (D – Lakewood) and interested residents of Cleveland’s Detroit Shoreway area and I shared my 20 minute PowerPoint presentation and answered questions.
* Host a showing of the award-winning documentary: How to Die in Oregon. Available on Netflix or through local libraries.
* Approach local groups, such as Rotary Clubs, to organize speaking opportunities.

Thank you to Nancy and Tom Seitz who donated $500 following our last email blast! In addition to their donation, supporters contributed $600 to help continue our education and outreach activities. We thank you!

Consider sharing your thoughts about medical aid-in-dying. It’s important to show a community of support for this issue all throughout Ohio. You can post thoughts on our website OhioOptions.org and on Facebook: Ohio End of Life Options. You can also write a letter to the editor in your local paper.

Thank you again for your support.
Lisa Vigil Schattinger,
Founder and Executive Director

Cleveland Clinic Bioethics Department learns about Medical Aid-In-Dying

Thank you to the Cleveland Clinic Bioethics Department for hosting Lisa Vigil Schattinger at their Grand Rounds lectures series on Monday, September 12. Important discussion of Medical Aid-In-Dying safeguards and concerns were addressed through the story of Dr. Jack Rowe. Dr. Rowe, Vigil Schattinger’s stepfather, used Oregon’s Death with Dignity Act in November 2014 to end his life peacefully after being diagnosed with a terminal illness. The lecture was followed by a small round table discussion in the ethics department. It was attended by ethics fellows and faculty, as well as representatives from Palliative medicine, Hospice, End-of-Life Specialists and philosophers from throughout Northeast Ohio. There was a lot of thoughtful discussion during the question and answer period.
schattinger-flyer-grand-rounds-9-12-16

Tri-State Freethinkers host Medical Aid-In-Dying & Final Exit Speakers

The Tri-State Freethinkers hosted an event called Dying With Dignity & Final Exit: Two very different approaches to the same issue in Newport, KY on September 7. Lisa Vigil Schattinger of Ohio End of Life Options and Robert Rivas of Final Exit were invited to speak. The room was filled with people concerned about end-of-life issues. There was a great conversation as the Freethinkers asked questions about Medical Aid-In-Dying laws and the work of Final Exit. Thank you to Tri-State Freethinkers for addressing these important issues. This was especially timely since Senator Charleta Tavares was quoted on September 4 in a Columbus Dispatch article as planning on introducing medical Aid-In-Dying legislation in Ohio in 2017. Ohio End of Life Options advocates for laws based on Oregon’s Death with Dignity Act. Education is key in understanding the effective safeguards built into these laws in OR, WA, VT & CA.tri-state-audience tri-state

Senator Charleta Tavares plans Medical Aid-in-Dying legislation in 2017

Ohio Senator Charleta Tavares (D – District 15, Assistant Minority Leader) plans to introduce legislation in 2017.

Lisa Vigil Schattinger, Liz Nuechterlein and Rev. Patricia Shelden met with her senior aide in April 2015 to bring education about Oregon’s Death with Dignity Act and share Vigil Schattinger’s experience.

This article in today’s Columbus Dispatch, “Chronic pain’s emotional toll can lead to suicide,” focuses on chronic pain and its relationship to suicide because September is the extremely important Suicide Prevention Awareness month. The articles continues on to explore medical aid-in-dying.

“A debate on the controversial law could begin in Ohio as early as next year, when state Sen. Charleta Tavares, D-Columbus, plans to introduce a version of the Death with Dignity Act. She met this year with advocates for the law and is convinced people with terminal illness or those with irreversible conditions that cause them to suffer should have the option to end their life.

“It’s time to have this discussion in our state, and we shouldn’t be afraid of that,” Tavares said. “I don’t want to see people suffer. I want people to have an expiration that meets their physical needs, their spiritual needs and their families’ needs.

“If they don’t want to continue life, because of their pain, that should be their decision and their right to make it. It would help stop a lot of these horrible deaths we see where people end life with violent means, and that’s so hard on families.”

Write to Senator Tavares and your own state legislators expressing your support for a Death with Dignity style law in Ohio. Representative Nickie Antonio (D – District 13, Minority Whip) also expressed willingness to move forward with legislation.