Resources

Access current laws and information here:

Oregon’s Law – A summary:

  • Ohio End of Life Options: Summary of Oregon’s Death with Dignity Act & 2016 Report:
    2 page summary – Since 1997 – It’s important to learn about the details of the law.  There are parameters for who qualifies to use the law.  People who have diagnosis that include the possibility of dementia or Alzheimer’s Disease do not qualify because people need to be mentally capable adults with 6 months or less to live because of a terminal diagnosis that is corroborated by their primary physician and another physician.

Links to government websites for the laws:

Other links:

National Organizations (Please join these organizations to remain up to date and show support in Ohio):

Death with Dignity National Center – is a 501(c)3 nonprofit organization that:

  • expands the freedom of all qualified terminally ill Americans to make their own end-of-life decisions, including how they die;
  • promotes Death with Dignity laws around the United States based on the groundbreaking Oregon model;
  • provides information, education, and support about Death with Dignity as an end-of-life option to patients, family members, legislators, advocates, healthcare and end-of-life care professionals, media, and the interested public.

Compassion & Choices – “nonprofit organization committed to improving care and expanding choice at the end of life.”

Advance Directive information:

Cleveland Clinic Foundation
Hospice of the Western Reserve, Advance Directives Booklet (pdf)
LeadingAge Ohio – “Advancing Solutions for exceptional care and successful living”
MetroHealth
Ohio Hospital Association Ohio, Advance Directive Planning Packet (pdf)
University Hospitals Case Medical Center

Hospice Interview Questions – Please take the time to interview Hospice services before enrolling yourself or a loved one.

Choosing a Hospice: 16 Questions to Ask

Tools for starting the conversation about end-of-life wishes:

Dr. Atul Gawande:


The Conversation Project
– “dedicated to helping people talk about their wishes for end-of-life    care.”

Hello – A Conversation Game for Living and Dying – “May, 2015: In a study, 74% of people who played My Gift of Grace [now Hello] went on to perform an advance care planning activity following the game”

Books:

Yourstory Catcher, Sarah Kappus Peck – “My name is Sarah Kappus Peck. I created Yourstory Catcher because I am passionate about capturing family stories and saving them by creating custom heirloom books.”

Voluntary Stopping Eating and Drinking (VSED):

  • Dying Wish with Dr. Michael Miller (video) – “Dying Wish is a documentary about hospice patient, Dr. Michael Miller, an eighty-year old, retired surgeon with end-stage cancer who chooses to stop eating and drinking in order not to prolong his dying process, to ease his suffering and to die with grace.”
  • Phyllis Shacter, Choosing to Die A Personal Story – “Phyllis Shacter courageously shares the first personal story ever written about Voluntarily Stopping Eating and Drinking (VSED). This memoir and guidebook follows the journey she took with her husband, Alan, once he decided to VSED so he didn’t have to live into the late stages of Alzheimer’s disease.”
  • The VSED Exit: A Way to Speed Up Dying, Without Asking Permission, by Paula Span, The New York Times, October 21, 2016.
  • VSED page on Death with Dignity’s website with some additional videos and resources.

Estate and Funeral Planning:

Family Love Letter: Information in a time of confusion

Cleveland Memorial Society: “The brief time it takes now for thoughtful planning and making a record of your wishes will become a lasting gift of your love to your family and survivors.”